[-] YourHeroes4Ghosts@beehaw.org 11 points 7 months ago

I'm just tired, sad, ill, disappointed, and so very alone. That's all I got this week.

[-] YourHeroes4Ghosts@beehaw.org 8 points 8 months ago

Honestly, when I left Reddit I was extremely excited by the potential of federation, but at least in the case of Lemmy, my enthusiasm was premature. I mostly stay on Beehaw these days.

I'm a member of a few communities on other instances- for example, I'm super into aquariums and "Pets" just doesn't quite do it for me as it lacks in-depth discussion of aquarium fish, and as an autistic/ADHD adult "neurodivergence" doesn't quite meet my needs as it seems to be strongly focused on people who only have ADHD.

The communities I've joined on other instances don't have a lot of traffic, so I end up back here 99% of the time, and that's okay. If Beehaw decides to become a non-federated community I will still be here. I have a few other accounts I can use to access the Fediverse should I want to do so.

[-] YourHeroes4Ghosts@beehaw.org 15 points 8 months ago

I started to post yesterday, but I was feeling down for no discernable reason, and I couldn't think of anything to say other than how awful I felt. Today, thankfully, I feel a lot better.

Much to my joy, my youngest (who is 20 years old) has agreed that, instead of me scrambling around looking for perfect, expensive presents for Christmas for everyone (which is pretty much exclusively my job), we're all just going to buy stocking stuffers for each other and let each person buy their own expensive things instead of expecting me to do it for them. It just seems so ridiculous to me that I got my kids addicted to a Christmas celebration that often left me so burned out that I'd spend the week between Christmas and New Year's in bed. We're not even Christian, and my kids are adults, so why on earth am I still killing myself to make the day perfect for them, when they have no interest in doing the same for me? We all have similar incomes, so this seems very fair to me. I hope it will take some of the stress out of the coming season.

Finally, I'm starting to feel better on CPAP. Got a full face mask instead of those horrific nasal pillows (I don't get how having something shoved into your nostrils is supposed to be the most comfortable option, especially when I had to tape my mouth shut to make them work at all!). I kept waking up flat on my back, when I haven't been able to breathe while laying on my back since the mid-1990s. Checked my data using OSCAR, and have learned a whole lot. Apparently, with a CPAP and a full face mask, I can both breathe and sleep just fine on my back- last night I only spent thirteen seconds total in apnoea- and I've had some episodes of deep sleep that lasted more than an hour, when I couldn't maintain deep sleep for two minutes with untreated apnoea.

This of course makes me wonder if I've actually had apnoea since the mid-1990s and how much damage I've done to my brain. At my age I doubt I will get all of it back.

I'm concerned about my eldest, who seems very dull and quiet lately. They've been a hardcore tech person since they were a toddler (not even exaggerating) and are now saying things like "I just leave all settings on default, it's easier", and not even bothering to do a search when they run into issues with things. They are behaving like my 73-year-old husband and it's super worrying because they will be 29 next month. I wish I knew what to do to help them.

I also need to stop treating this thread like it's my personal blog, haha.

[-] YourHeroes4Ghosts@beehaw.org 8 points 8 months ago

I got some really nice chai from the local Indian supermarket. I gave up coffee a few months ago- or Ozempic put me right off it- and I had a hole in my life where a hot drink belongs. I'm glad to have found something I like.

It's looking like it'll be a stormy autumn and winter and honestly I'm here for it, even though I know the reasons for it are ungood on a global scale. I love wind and rain to a ridiculous degree.

I think I've finally worked out all the CPAP bugs but I'm still waiting to feel better. I suspect that part of the problem is that the dose of my blood pressure medication needs to be lowered and that's making me tired, but I won't see my GP again until next month so I have to deal.

[-] YourHeroes4Ghosts@beehaw.org 8 points 9 months ago

We had an unseasonably hot spell a couple of weeks back which was pretty miserable- I don't do well in hot weather at all. Today it's cool and windy and autumnal and I'm making a stew with Yorkshire puddings for dinner, which is much more emotionally satisfying than the cold potato salad we were eating a week and a half ago.

I don't talk about this much, but I've lost about 30% of my body weight in the past year. Before anyone asks, the answer is "Ozempic". I had a bunch of stuff in smaller sizes in storage but was afraid to try anything on. I did so yesterday and discovered that not only do my small jeans fit, they're actually a bit loose. So that's awesome.

I'm tired. And tired of being tired. And still waiting to see benefits from using a CPAP. Instead it's all getting worse- I'm having a ton of mask leakage and can't figure out why. I'm supposed to finally see the specialist on the 28th, but as a visibly non-conformist woman I'm not expecting that to go well at all. Mainly I'm expecting "your numbers are fine, stop wasting my time".

I'm really looking forward to the day when I won't mostly write complaining about the damn CPAP.

[-] YourHeroes4Ghosts@beehaw.org 14 points 10 months ago

I'm so sorry for your loss. I keep fish, especially Betta fish, and I reached a point where I realised I'd have to accept their short lives because they bring me such joy. So I'll just pass on what one of my friends often says: "May their memory always be for a blessing."

[-] YourHeroes4Ghosts@beehaw.org 10 points 10 months ago

I joined Beehaw because I was hoping for more of exactly what you posted here. Thank you. You're also a bright, shining light and I am grateful that you're here.

[-] YourHeroes4Ghosts@beehaw.org 12 points 10 months ago

Not horrible, in general. The saga of the CPAP continues. Some nights I sleep well, some nights I don't. I suppose I'm sort of getting used to it? Last night was not good so that's colouring everything.

I saw a doctor who agreed to start me on post-menopausal HRT, as I have a family history of severe osteoporosis. I can think of about fifty other reasons I want to be on HRT, so I'm delighted.

My adult son and I made up from the huge fight we had last week, and I was able to come out of my room. The gist of the fight is that I need my adult kids to adult more than they do. I'm tired of managing the household. I know that in our location neither kid has the option of moving out (there's a severe housing crisis and even if you find a place, rents are crazy expensive). I can live with that, but I can't live with them doing nothing and leaving all the household chores to me like I'm the maid.

[-] YourHeroes4Ghosts@beehaw.org 9 points 10 months ago

I think we agree on far more than we disagree on. However, for me, autism is legitimately disabling- I am prevented from engaging in many normal life activities that non-autistic people enjoy. Partly this is due to extremely severe sensory processing disorder, which I was told is part of my autism diagnosis and not a separate issue. Partly it's due to ableism, which I define as "social prejudice against people with a specific diagnosis"- which is exactly what's happening when an NT prefers the company of a member of a hate group above the company of someone with an autism diagnosis.

[-] YourHeroes4Ghosts@beehaw.org 19 points 10 months ago

As an autistic adult, it makes me incredibly sad that you would prefer to meet a transphobe. Occasionally (not on Beehaw as far as I know) I'm accused of being pedantic and argumentative online, but often the cause is a total misinterpretation of my tone and intent. I find it heartbreaking that hanging out with a transphobe is preferable to trying to understand an autistic person, and in all sincerity I hope you will explore the cause of your ableism so you can overcome it.

[-] YourHeroes4Ghosts@beehaw.org 16 points 10 months ago

This week is being a bit of a roller coaster. I got a CPAP machine yesterday after having been on a waiting list to get one for years. I was so happy to get it! But last night was by far the worst sleep I've had in ages- the machine feels like it's suffocating me, and I apparently pushed it off my face at some point during the night, but the ridiculous app that came with the machine does not tell you what time you removed the mask or for how long, and apparently if you wake up and take a long time to fall asleep again, the app will totally ignore the initial period of sleep.

So today I'm exhausted and irritable, and woke up to excited messages from friends who were expecting the CPAP to change my life from the very first night, which was difficult to cope with, though of course I know they meant well. I hope things will get better.

[-] YourHeroes4Ghosts@beehaw.org 20 points 1 year ago

I'm a 51 year old woman who plays video games (including ESO, PC/EU). We exist. If there is some sort of arbitrary cutoff age when I'm supposed to stop gaming, I will be steadfastly ignoring that "rule", if I haven't already.

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submitted 1 year ago* (last edited 1 year ago) by YourHeroes4Ghosts@beehaw.org to c/gaming@beehaw.org

I'm looking for PC games that I can play while listening to podcasts- games that don't have engaging cut scenes or important dialogue, games that honestly don't require a lot of skill or thought.

I used to be really into things like Farm Frenzy, Rescue Team, hidden object games, that kind of thing. I got heavily into MMOs and stopped downloading casual games for a decade or so.

Now it almost feels like this sort of game isn't made anymore? Were they completely nuked by the existence of Gacha games, P2W, and anything that earns the dev a constant income stream? I'm happy to pay for a game once, but I can't be constantly buying booster packs.

I also don't want to play on mobile or on a console, PC Master Race here, haha.

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YourHeroes4Ghosts

joined 1 year ago