this post was submitted on 20 Aug 2023
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As a person who doesn't want kids anyway, I might not be the target audience of your question, but I will weigh in regardless.
There are two components here:
Bringing someone to existence when they are likely to inherit this terrible disease.
Having your children experience seeing their parent with this disease.
You don't have to subscribe to anti-natalism to decide that it would be better to not have kids in this situation.
You could however, if you still want to raise children, but don't want to worry about #1, you can adopt. Plus you will spare yourself/your partner the pain and risk of pregnancy and childbirth, while at the same time give a family to a child who has none. Problem #2 will still be there, but depending on the age of the kid you adopt, they won't be as young when/if you develop the symptoms and therefore might be better equipped to handle that.