this post was submitted on 20 Aug 2023
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This has been on my mind lately. My dad is going through it, his sister has got it pretty bad and I apparently have the predisposed gene to get in my future.

I’m leaning no because I wouldn’t want to make my child go through slowly watching their dad’s mind leave them and also potentially pass it on to them when they get older.

It’s thrown me for a loop since I always imagined myself having kids and I’m around that age now.

What do you think?


Edit: I just want to say that I did not expect the kind of response this post got. I’m grateful for all of your comments and the perspectives it’s allowed me to peak into.

I also should mention that were I to have children they would most certainly not be burdened by being the crutch of my own personal journey of accepting and loving who I am. That is work for me alone and I would never unload that responsibility onto those I love and especially those who I’d be raising.

As for my partner not wanting kids, I would never consider forcing or persuading them to raise a child when they know for certain it’s not in their cards. This is another element in how I’ve been navigating this question. I love her with everything I have and I can’t imagine us being apart and yet there is a pang that lingers of the father I assumed I would eventually become.

Anyway, thanks again for your thoughtful replies. They’ve helped so much especially since this is the first time I’ve voiced these thoughts.

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[–] grabyourmotherskeys@lemmy.world 6 points 1 year ago (1 children)

Hi, I am from a family with a lot of autoimmune conditions like Crohn's, Ankylosing Spondylitis, MS, and Alzheimer's. My father started to "lose it" in his late 50s, retiring a little early. He lived a long life until early 90s but the last ten years were hard on everyone. But my mother took care of him and we will tried to help.

I was 38 when our child was born. I was very concerned about passing on anything and he probably is going to have Crohn's or IBD.

But here's the thing. All of my family has done our best to live our best lives and yes it isn't the best physical condition at times but we have loved, taken chances, l made mistakes, had laughs, etc. That's worth it.

I've also known people who were ironman triathlon champs having heart attacks.

Only you can decide on kids. That's not why I'm here. I'm here to tell you the chance that you or they might have Alzheimer's doesn't have to be the deciding factor.

Also, there are pilot studies in Alzheimer's vaccines and other treatments.

[–] Mog_fanatic@lemmy.world 4 points 1 year ago* (last edited 1 year ago) (1 children)

One thing I don't see mentioned here at all is the financial burden incurred by caring for a family member with serious problems like this. Obviously this is very dependent on the country in which you live but at least in the United States it is very possible to be buried in debt for caring for someone else. Personally, I will be trying to pay off medical bills from taking care of a family member in their final days probably for the rest of my life barring a miracle.

I'd rather not potentially saddle my children with the same if I can avoid it.

Good point. I'm Canadian and it didn't really enter the picture. It would have if my father wasn't able to stay at home. It was very difficult but wasn't costly. Sending him to a long term care facility would have cost a small fortune.