this post was submitted on 30 Oct 2023
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[โ€“] Breezy@lemmy.world 4 points 10 months ago (1 children)

I was gonna bring this one up, not because i have it, but my mother does. I barely under stood it after it was explained several times. Hardly no one knew what it was when my mother was diagnosed, some of other docters havent had even heard of it according to her.

[โ€“] SamXavia@kbin.run 4 points 10 months ago

@Breezy Yes sadly most doctors haven't heard of it and if they have some don't think it's actually a thing. I'm very lucky in having my mum that also has the same condition so it's nice to know i'm not the only one going through things.

Also no one knows if it is genetic there has been very little research about it let alone in that area. Glad you came to comment hope your mother has learnt to deal with the pains, fog and tiredness.