30+ years later and my kid is going through the same thing. The workers at the nursery are decent though, and suspect neurodiversity. A couple of appointments later and my kid gets an autism and ADHD diagnosis. My wife and I speak to them because my symptoms are so similar, and they said that from the conversations we had about my kid, they assumed that I had already been diagnosed.

I'm now 45 and still on a waiting list for an official diagnosis 😫

[–] AddLemmus@lemmy.ml 23 points 1 month ago (5 children)

Exact same story down to every detail. Both parents teachers, but no clue. The weirdest conclusions and theories about me. Like: Far below average intelligence, but with a talent for languages and mathematics (is that even a thing?), which got me through school with effortless Cs. Most of the time I (and probably others) thought I was just a general shithead.

I realised what it was 4 years ago and told a psychiatrist, who did not disagree, but was like: woa, hold your horses. Got a referral to a full neurological & psychiatric check-up from my GP, who wrote on the referral that he suspects ADD without hyperactivity, 1 1/2 years ago. Couldn't use it, because they are overrun by more urgent cases.

Started paying out of pocked to a private clinic 6 months ago and got the official, written diagnosis 1 month ago (exactly what my GP already suspected). Since then, lots of delays to get treatment. No appointments, then appointment available, but latest bloodwork and ECG expired etc. Had one appointment last week cancelled 2 hours before start.

Honestly, with a medical system so overrun, a GP should just be authorised to do the diagnostic if supported by purely computer evaluated multiple choice test. The standardized tests appear to be the foundation anyway, and the many hours of additional psychiatric evaluation are just something that the medical system can't support.

And yes, now my child. He is a true math genius who could do 2 or 3 classes above his own, but he hates books (only since school, not before!) and his reading & writing is just a hateful, effortless B. In two languages equally well, though. I suspect something is up there, but don't want to project. I never had problems understanding math, but was certainly not ahead of the class. Loved books though, perfect spelling.

Let's hope things work out for us and our children!

[–] eleitl@lemm.ee 5 points 1 month ago (2 children)

ADD subtype PI, for primary inattentive. If methylphenidate and atomoxetine don't work for you make sure you try lysdexamfetamine.

[–] AddLemmus@lemmy.ml 2 points 1 month ago (1 children)

Thanks, noted! Currently helping myself with Modafinil with pretty good results, but too many side effects. Doc seems to be very fixated on Methylphenidate, so we'll see if they are even open to trying something else. In standardised tests, I maxed out the ADD scale, but missed criteria for hyperactivity by a little, if I understood correctly. Same with childhood ADD; they said they can't tell for sure when it started after so much time has passed.

[–] eleitl@lemm.ee 5 points 1 month ago

Zero hyperactivity here. Just leg jerking and pacing back and forth during calls/meetings. Modafinil kinda sorta works but Elvanse/Vyvanse is a whole different league.

Methylphenidate just gave me brain fog. Atomoxetine worked great for 6 months but then just stopped. I stopped taking Vyvanse a long while ago due to side effects.

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