this post was submitted on 13 Sep 2023
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A disturbing number of TikTok videos about autism include claims that are “patently false,” study finds::A recent study published in the Journal of Autism and Developmental Disorders found that a significant majority (73%) of informational videos on TikTok tagged with "#Autism" contain inaccurate or overgeneralized information about autism. Despite the prevalence of misinformation, these videos have amassed billions of views, highlighting the potential for widespread misconceptions about autism on the platform. ...

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[–] PixelProf@lemmy.ca 5 points 1 year ago (1 children)

I'm really torn on this, because on one hand the over generalization of ADHD prevented me - and is still preventing me - from taking my own diagnosis too seriously, but that same information got me to at least think about it and get a consult with a psychiatrist on it in the first place.

It helped the diagnosis but not the feelings of being an imposter post-diagnosis.

[–] NightAuthor@lemmy.world 2 points 1 year ago (1 children)

Dr Russell Barkley is, as far as I can tell, the world’s foremost expert on ADHD.

He’s got lectures that I found engaging enough to watch, and shorter videos on various subjects-topics.

Watching his stuff, it felt very validating and enlightening and helped push me past my imposter feelings.

[–] PixelProf@lemmy.ca 2 points 1 year ago (1 children)

Yeah, Barkley's talks have helped a lot so far. Previous psychiatrists largely wrote off diagnoses because I was successful in work, but overlooked the challenges at home. Some trauma therapy combined with Barkley's unique focus of adult symptoms of ADHD really opened my eyes to it.

Still doubts, still confusion, but clearing up.

[–] NightAuthor@lemmy.world 1 points 1 year ago

Yeah I too had a bit of trouble getting diagnosed, even my new psych, who I like quite a bit, he seemed to be overly focused on work/productivity side of my issues. And when it came to meds, I had to be a bit more insistent on trying meds that would give me 24-hour coverage. Because I struggle to motivate myself to get out into social situations, to make friends. I'm never motivated to work on personal projects, things I'm truly interested in but only ever work on in fits and starts, when the stars align.

Barkley's talks helped me work with my psych, especially the talks about the various medications, about how ADHD affects all aspects of your life, and how important it is to find and refine a medication regimen that is optimal for you in strength and duration.